Families of infants paralysed by spinal muscular atrophy demand the Government adds the condition to ones tested for in the heel prick test, done on babies at five days.
Experts have called the five-year delay by the Government's National Screening Committee a national medical emergency. Dozens of countries, including the US, Australia, Japan, Russia, most of the EU and even war-torn Ukraine have introduced the simple test.
Gene therapies can now prevent newborns with SMA suffering paralysis but only if given at birth before irreversible damage has occurred.
Since 2019 around 250 babies have been disabled by the genetic condition known as floppy baby syndrome.
Meanwhile the NSC, which advises government, is dithering over whether to use the test.
One such sufferer is Ollie Williams, now three, diagnosed at three months.
He needs a feeding tube into his stomach and oxygen machine at night. His mum Amy said: "Every child should be tested for this and it's devastating this hasn't happened. If a country like Ukraine in the middle of a war can add it to their heel prick test as well as countries that are not as wealthy as the UK, then why can't we?"
هذه القصة مأخوذة من طبعة June 14, 2024 من Daily Mirror UK.
ابدأ النسخة التجريبية المجانية من Magzter GOLD لمدة 7 أيام للوصول إلى آلاف القصص المتميزة المنسقة وأكثر من 9,000 مجلة وصحيفة.
بالفعل مشترك ? تسجيل الدخول
هذه القصة مأخوذة من طبعة June 14, 2024 من Daily Mirror UK.
ابدأ النسخة التجريبية المجانية من Magzter GOLD لمدة 7 أيام للوصول إلى آلاف القصص المتميزة المنسقة وأكثر من 9,000 مجلة وصحيفة.
بالفعل مشترك? تسجيل الدخول
ELL OF A TALENT...ELL OF am A REGRET
Howe annoyed at having to sell Anderson as he tips the former Toon star to have a big future with England
I fear misfiring Gunners will lose out again
BOTH Manchester City and Arsenal have hit bumps in the road lately, but I would rather be in Pep Guardiola's shoes than Mikel Arteta's right now.
JUST LET HER PLAY
Humphries' support for transgender star Noa-Lynn Van Leuven.
'Good nutrition fuels the brain'
Pupils get vital lessons on healthy eating
'Crocodile Beefy': I was nearly catch of the day
Botham falls in river infested with killers
Poison plot GP's wife: I'll wait for him.. I trust him
Jailed doc tried to kill mum's lover for inheritance
My gentle father
Lucan son speaks up amid claims missing lord has been traced
Everything told me I was going to die
THE police marksman who shot Jean Charles de Menezes says he feared he was about to die as he pulled the trigger.
A hairstyling hero
Celeb stylist Sorbie, who used his skills to aid cancer patients facing hair loss, dies at 75
Kate's back to honour sacrifice
Princess at weekend services