The Ministry of Health & Family Welfare has earmarked 900+ crore for rare diseases, including SMA, for initiating centralised procurement of rare disease treatments.
At a press conference on Wednesday, CureSMA urged the government to initiate the procurement process as directed by the court within 45 days, and said they would help in the process.
According to Union Health Ministry estimates, India has a staggering 8.4 to 19 crore individuals affected by rare diseases. Among these, SMA is a severe, progressive genetic condition that affects essential physical abilities like walking, eating, and breathing. It is also the leading genetic cause of death among children worldwide.
هذه القصة مأخوذة من طبعة November 21, 2024 من The Free Press Journal.
ابدأ النسخة التجريبية المجانية من Magzter GOLD لمدة 7 أيام للوصول إلى آلاف القصص المتميزة المنسقة وأكثر من 9,000 مجلة وصحيفة.
بالفعل مشترك ? تسجيل الدخول
هذه القصة مأخوذة من طبعة November 21, 2024 من The Free Press Journal.
ابدأ النسخة التجريبية المجانية من Magzter GOLD لمدة 7 أيام للوصول إلى آلاف القصص المتميزة المنسقة وأكثر من 9,000 مجلة وصحيفة.
بالفعل مشترك? تسجيل الدخول
India in top 10 deep tech start-up ecosystems
A little over a decade ago, many deep tech enterprises in areas such as space couldn't get fund
Bishop Rodrigues is Coadjutor Bishop
Pope Francis has appointed Bishop John Rodrigues as the coadjutor bishop of the Roman Catholic Archdiocese of Bombay which has nearly five lakh members.
BJP says rift thing of past in twin city
Days after BJP's Narendra Mehta unseated sitting legislator Geeta Jain in the assembly seat of Mira-Bhayandar, district BJP chief Ravi Vyas clarified there is no rift within the party in the constituency.
Research to cost 18% less with ONOS scheme: IIM-M
A new evaluation from the Indian Institute of Management (IIM)-Mumbai reveals that the implementation of the One Nation One Subscription (ONOS) scheme will result in an 18% reduction in research expenses.
Swearing in on December 5
The state BJP chief Chandrashekhar Bawankule on Saturday declared that the new Government would be sworn in on December 5 in the presence of the Prime Minister at Azad Maidan.
EC gives Cong time to discuss Maha polls
The Election Commission on Saturday asserted that all poll procedures it followed in Maharashtra were transparent and assured that it would review all legitimate concerns flagged by the Congress.
MAHA POWER STRUGGLE, MAHA DELAY
THE CM CONUNDRUM | RSS wants Devendra Fadnavis as Chief Minister but BJP is pushing for a non-Brahmin Maratha
Cyclone Fengal Wreaks Havoc
Landfall and after: Street scene in Chennai on Saturday afternoon
US universities call foreign students back
The measure is a hedge against a potential visa ban when Donald Trump takes charge in January
SC rejects timed trial orders
The Supreme Court has criticized high courts for setting time-bound schedules for trial conclusions when rejecting bail applications, terming such directions impractical and misleading for litigants.
