We’re making every moment count with my boy’s bucket list By Joanne Ashton, 48, from Liverpool
At first I didn’t notice anything was wrong. My son Liam was just like any other baby.
But when he was 2, I noticed his younger cousin seemed to be strides ahead.
While he climbed the stairs, Liam still crawled up and bum-shuffled down.
Our GP referred Liam to a specialist, who noticed he walked funny.
Eventually, Liam was sent to Alder Hey Children’s Hospital.
‘We think he might have muscular dystrophy (MD),’ a doctor said.
It’s a progressive muscle weakening condition.
A blood test soon confirmed it. And a muscle biopsy revealed Liam had a type called Duchenne MD.
It’s more common in boys. And it’d affect his ability to walk and stand.
‘Most sufferers need a wheelchair by the time they’re 14,’ a doctor explained.
The cruellest blow was yet to come, though…
‘It’s life-limiting,’ he said.
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