Nearly 20 years ago, Celine Dion felt an odd sensation in her throat and wondered if she was coming down with a cold. As time went on, more unusual symptoms appeared. She struggled to control her singing voice, her vision blurred and she had shortness of breath. In the most terrifying moments, her body stiffened as she experienced painful muscle spasms.
In a new documentary, I Am: Celine Dion, the international superstar shares what it’s like to suffer from stiffperson syndrome. “I have to learn to live with it now and stop questioning myself,” says Celine, 56, who is currently treating her symptoms with non-pharmacological medication, immune therapy, vocal therapy and exercise. “I have two choices. Either I train like an athlete and work super hard,” she says, “or I switch off and it’s over.”
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