Geoff Burrow spoke out after a health watchdog controversially ruled out a wonder drug on the NHS.
Leeds Rhinos legend Rob, 41, was diagnosed with incurable brain and nerve condition MND in 2019.
The dad of three, who died on June 2, dedicated the last years of his life to finding a cure.
In a poignant moment last year, below, former team-mate Kevin Sinfield carried Rob across the finish line of the fundraising Rob Burrow Leeds Marathon.
But the National Institute for Health and Care Excellence has sparked fury by ruling the number of people who would benefit from tofersen is too small to justify the cost of putting it on the NHS.
Hope
Esta historia es de la edición June 20, 2024 de Daily Express.
Comience su prueba gratuita de Magzter GOLD de 7 días para acceder a miles de historias premium seleccionadas y a más de 9,000 revistas y periódicos.
Ya eres suscriptor ? Conectar
Esta historia es de la edición June 20, 2024 de Daily Express.
Comience su prueba gratuita de Magzter GOLD de 7 días para acceder a miles de historias premium seleccionadas y a más de 9,000 revistas y periódicos.
Ya eres suscriptor? Conectar
HOT TO THE TUCH
Thomas has so much talent at his disposal
Southgate showed me how to be smiles better
LAUGHS AND INSIDE JOKES BRING CUP TEAM TOGETHER
Buttler calling for the big two
ONE-DAY HOPES FOR STOKES AND ROOT
Aaron's determined to turn jeers into cheers
AARON WAINWRIGHT fully understands fed-up Wales fans have started voicing their grievances at the long and sorry plight of their side.
SKELTON HAS GREY-T EXPECTATIONS
DAN SKELTON has claimed Betfair Chase favourite Grey Dawning is \"as good as any staying chaser we've had at this stage of their life\".
Billionaire family fight for £21m Idol's Eye gem
A £21MILLION diamond known as the Idol's Eye is being fought over in London by Qatari royals.
Oakes brings fight for trees to No 10
ACTOR David Oakes joins campaigners in Downing Street to deliver a 100,000-name petition calling for historic trees to be protected by law.
Non, je ne regrette rien composer dies aged 95
THE French composer behind Edith Piaf's biggest hit died yesterday at the age of 95.
Davina out of intensive care after brain surgery
TV host Davina McCall has made an \"enormous leap forward\" in treatment for a brain tumour, her partner revealed yesterday.
Owner admits killer XL bully was out of control
A MAN whose XL bully mauled his neighbour to death yesterday pleaded guilty to owning an out-of-control dog.
