A GRIM future for one-year-old Dexter Newton has become much brighter thanks to an Express campaign that has won him the right to receive a life-saving NHS drug.
Pressure from cystic fibrosis campaigners and a five-year.
Daily Express crusade have succeeded now anyone born with the condition will have access to wonder treatments which can prolong their lives.
The delighted parents of oneyear-old Dexter said he will "now have the chance of a full life not restricted by this genetic disease.
It's amazing." CF sufferer Carlie Pleasant, 34, who helped launch our campaign, said: "This is fantastic news for anyone in the UK who has this cruel condition and for the generations yet to come."
The life-limiting genetic condition slowly clogs the lungs with mucus. There are more than 11,000 sufferers in the UK, and there was no effective treatment on the NHS prior to 2019.
Our campaign began in February that year and by the October the first of three drugs from US pharma giant Vertex Orkambi, Symkevi and wonder pill Kaftrio - became available to UK patients.
They are currently used by some 8,000 CF patients. But last autumn NHS drug approver the National Institute for Health and Care Excellence (Nice) gave draft guidance that, despite transforming people's lives, they are too costly for new or future ČF patients to have.
The change would not have affected those already on treatment yet might have led to drugs being approved for current CF patients but denied to newborns.
Esta historia es de la edición June 21, 2024 de Daily Express.
Comience su prueba gratuita de Magzter GOLD de 7 días para acceder a miles de historias premium seleccionadas y a más de 9,000 revistas y periódicos.
Ya eres suscriptor ? Conectar
Esta historia es de la edición June 21, 2024 de Daily Express.
Comience su prueba gratuita de Magzter GOLD de 7 días para acceder a miles de historias premium seleccionadas y a más de 9,000 revistas y periódicos.
Ya eres suscriptor? Conectar
Forest party like it's 1979 as Nuno's men are second to none
CHRIS WOOD and Morgan Gibbs-White had Nottingham Forest fans ringing in the new year like it was 1979.
REDS MAKE CAPITAL GAINS
Slot's men run riot in London again as Salah weaves magic
Relief at last for Pep but it's far from easy
SAVINHO GOAL SETS UP RARE AWAYDAY DELIGHT
Dynamo Delap will one day roar for Lions
ENZO BACKING FORMER CITY ACADEMY STRIKER TO STAR FOR ENGLAND
BRENDEN HAS LEEDS ON TOP
Aaronson brings some New Year cheer
CRAZY RIDE
Luke aims to top roller-coaster year with big prize
New coach Andy is so handy for Novak
BUT TELLING HIM SECRETS IS 'STRANGE'
A DAY TO REMEMBER
Elliott mare becomes major Champion Hurdle prospect
Young peer launches Bill to criminalise deepfake porn
ONE of the youngest peers in the Lords will attempt to make her mark by criminalising deepfake porn.
Trainee officers arrest fleeing rapist
THIS is the moment CCTV captured two student police officers chasing a rapist in the street after he attacked a woman in a park.