THE family of a little girl living with a devastating diagnosis have issued a desperate plea for her to have access to a life-saving drug.
Isabelle Bennett, who is just 11 months old, was diagnosed with cystic fibrosis (CF) three weeks after she was born.
The youngster has been undergoing treatment at Manchester Children's Hospital ever since and requires daily physiotherapy and rounds of medication. She was due to start a life-saving modulator drug in just a few weeks but now the treatment could be snatched away from her aftercare bosses deemed it 'too expensive' for new patients.
Parents Hannah and Matthew, from Bury, had hoped she would be given the chance to live a 'full and healthy life' through these drugs. But the family has been left terrified for her future, saying the draft guidance has left thousands of infants, including Isabelle, in limbo.
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