THE family of a little girl living with a devastating diagnosis have issued a desperate plea for her to have access to a life-saving drug.
Isabelle Bennett, who is just 11 months old, was diagnosed with cystic fibrosis (CF) three weeks after she was born.
The youngster has been undergoing treatment at Manchester Children's Hospital ever since and requires daily physiotherapy and rounds of medication. She was due to start a life-saving modulator drug in just a few weeks but now the treatment could be snatched away from her aftercare bosses deemed it 'too expensive' for new patients.
Parents Hannah and Matthew, from Bury, had hoped she would be given the chance to live a 'full and healthy life' through these drugs. But the family has been left terrified for her future, saying the draft guidance has left thousands of infants, including Isabelle, in limbo.
This story is from the {{IssueName}} edition of {{MagazineName}}.
Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 9,000+ magazines and newspapers.
Already a subscriber ? Sign In
This story is from the {{IssueName}} edition of {{MagazineName}}.
Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 9,000+ magazines and newspapers.
Already a subscriber? Sign In
Ten Hag wants a £200k 'privacy wall' at Carrington
ERIK ten Hag has reportedly requested a privacy wall to be built at United's training ground, costing the club £200,000.
"There is no reason to expect any sort of statement after Sir Jim's meeting'
UNITED are yet to clarify Erik ten Hag's future following their executive meeting in London on Tuesday.
ETH says Ugarte needs time but it's hard to develop if he's not playing...
ERIK ten Hag's decision to drop the two central defenders he had worked with previously and pushed to be reunited with at Old Trafford attracted plenty of attention this week, but it wasn't his only surprising selection call.
BEV'S LOOKING TO GO CRAZY!
BEVAN French admits it will be 'a crazy feeling' if he can light up Saturday's Grand Final with another of his freakish tries.
HAALAND ON 'GABGATE' 'What happens on the pitch stays on the pitch'
STRIKER HAS ‘NO REGRETS' OVER THROWING BALL AT GAB
Root: Plenty of runs still to get
JOE Root insists there are 'many more runs left to get' overhauling Sir Alastair Cook to become England's record Test run-scorer.
'Local Retail Champions make our communities better places to live'
LOTTERY OPERATOR ‘EXCITED' TO RECOGNISE RETAILERS, SAYS ALLWYN CEO ANDRIA VIDLER
Badenoch or Jenrick to lead Conservatives
ROBERT Jenrick and Kemi Badenoch will go head-to-head in the final heat of the Conservative Party leadership contest, after James Cleverly was knocked out in the latest round of voting.
Letby told colleague of 'distress'
CHILD serial killer nurse Lucy Letby told a colleague more than a year before her arrest she was worried she had \"maybe done something wrong\" to babies, an inquiry has heard.
Idris acts to give youth a chance
IDRIS Elba has partnered with The Prince's Trust to launch a new project that aims to give a 'chance' to the young people of Manchester.