Geoff Burrow spoke out after a health watchdog controversially ruled out a wonder drug on the NHS.
Leeds Rhinos legend Rob, 41, was diagnosed with incurable brain and nerve condition MND in 2019.
The dad of three, who died on June 2, dedicated the last years of his life to finding a cure.
In a poignant moment last year, below, former team-mate Kevin Sinfield carried Rob across the finish line of the fundraising Rob Burrow Leeds Marathon.
But the National Institute for Health and Care Excellence has sparked fury by ruling the number of people who would benefit from tofersen is too small to justify the cost of putting it on the NHS.
Hope
Denne historien er fra June 20, 2024-utgaven av Daily Express.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
Allerede abonnent ? Logg på
Denne historien er fra June 20, 2024-utgaven av Daily Express.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
Allerede abonnent? Logg på
Antony backed to hit top gear again
RUBEN AMORIM wants to rediscover the old Ajax Antony by boosting the Brazilian's fragile confidence - if the winger is prepared to keep working \"really hard\".
Movie magic is on its way...
THE most anticipated films of 2025 are all blockbuster franchises topped by Mission: Impossible, Jurassic World and Avatar.
Explosions lit up the horizon, glowing red as dawn broke
RUSSIAN missiles litter Kyiv's holiday streets with balls of fire. The city was still dark and its inhabitants counting the days til Christmas when a barrage of ballistic missiles shattered the morning silence.
Astronaut over the moon with Rudolph
SUNI Williams sleighs when it comes to making a reindeer during her unplanned Christmas in space.
Teen tasered while playing tag wins £130k police payout
A TEENAGE boy who was seriously injured when police Tasered him as he played tag with friends has won more than £130,000 in damages.
I hope I managed to bring Automatic you some sunshine and light'
ZOE Ball signed off her final BBC Radio 2 breakfast show by saying she hopes she gave listeners a lift when they most needed it.
Oh baby...Joss's joy at pregnancy
SINGER Joss Stone said that being \"shocked was an understatement\" as she announced her third pregnancy, weeks after adopting a son.
Furious pharmacists blast Streeting
WES Streeting is facing a backlash from \"outraged\" pharmacists over delays to contract negotiations.
Royal 100th birthday wishes are Icing on the cake at surprise party for D-Day hero
HERO soldier Mervyn Kersh toasted his 100th birthday at a glittering surprise party held by royal appointment yesterday.
Mosley 'most likely died of heatstroke'
Coroner's open verdict on T'V doctor’s Greek island death
