IS MY SON'S LIFE NOT WORTH 100K?

As life-saving drug Kaftrio is deemed too expensive for NHS, 15-month-old cystic fibrosis sufferer Leo now 1 faces a premature death

- VIVIENNE AITKEN

THE parents of a tot with cystic fibrosis have hit out at plans to axe a life-saving drug.

Suzanne Doherty fears one-year-old Leo will die early without Kaftrio and said: "Is £100,000 more than my son's life is worth?" 

YOU CAN'T PUT A PRICE ON LIFE

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FOLLOWING a move to ban a life-saving drug on the NHS, a desperate mum has asked health bosses: "Is £100,000 more than my son's life is worth?"

Suzanne Doherty's 15-month-old boy Leo has cystic fibrosis and faces a premature death without miracle drug Kaftrio, which regulators say is too expensive to be prescribed on the NHS.

Suzanne, 37, and her fiance Christopher Kyle, 49, were devastated when they learned Leo has cystic fibrosis.

Their only hope for their little boy was treatment with Kaftrio, which medics told her he should get when he turned two.

But medicine regulators the National Institute for Health and Care Excellence (NICE) and the Scottish Medicines Consortium.

(SMC) believe that Kaftrio and two other drugs Symkevi and Orkambi are too expensive for the NHS.

The couple have been floored by the decision and are begging for a change of heart from NHS bosses, who plan to continue prescribing it for existing recipients but scrap it for new patients.

Suzanne said: "When we saw the announcement I was sitting in the car park at Asda and broke down. Everything stopped.

"I have an English degree but it was as if I was reading Swahili. It doesn't matter how many times I read it, I don't understand it."

Crying, she added: "I would sell everything to pay for it.