The parents of little Zachary de Wet are trying to buy their five-year-old son some time by slowing the progression of his incurable and rare disease called Hunter syndrome and fighting their medical aid which won't pay for the treatment.
But the legal fight is much wider that just this family because it affects all members who have conditions covered by prescribed minimum benefits.
A nongovernmental organisation, Rare Diseases South Africa (RDSA), has dedicated itself to fighting a legal battle with the medical aid scheme Med-Aid, which is being heard before the Council for Medical Schemes (CMS).
The hearings began again yesterday under a new board, following delays because of appeals.
CEO of RDSA Kelly du Plessis said: "There has been a lack of consistent application in law and the outcome of this matter will have a fundamental impact on all medical scheme users when it comes to prescribed minimum benefits."
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Xiaomi makes SA comeback
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Bafana poised for AFCON slot
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Ferraris favours Young Emperor
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New GLC63 sets record straight
Affalterbach machine pips rival from Munich to bragging rights.
Peter can get bettors off to a winning start
Lerena could craft a change of fortune for Vibe SA.
Goldie to score on Polytrack
Dean Kannemeyer looks to have some useful runners in his yard, both in Cape Town and Durban, and he also seems to have a knack as to which of his runners will run well on the Polytrack.
Nissan Navara on slippery slope
Pro-4X still makes for pleasant transport with good fuel sonsumption.
Chery range gets sweeter
Chinese carmaker has even bigger plans for lined up for South Arican market.
Sassy all-new Suzuki Swift
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Tests have helped Stubbs
When T20 cricket was first introduced, purists brushed it off as a bash-and-dash format which didn't require the same level of skills as longer forms of the game.