The parents of little Zachary de Wet are trying to buy their five-year-old son some time by slowing the progression of his incurable and rare disease called Hunter syndrome and fighting their medical aid which won't pay for the treatment.
But the legal fight is much wider that just this family because it affects all members who have conditions covered by prescribed minimum benefits.
A nongovernmental organisation, Rare Diseases South Africa (RDSA), has dedicated itself to fighting a legal battle with the medical aid scheme Med-Aid, which is being heard before the Council for Medical Schemes (CMS).
The hearings began again yesterday under a new board, following delays because of appeals.
CEO of RDSA Kelly du Plessis said: "There has been a lack of consistent application in law and the outcome of this matter will have a fundamental impact on all medical scheme users when it comes to prescribed minimum benefits."
Denne historien er fra September 06, 2024-utgaven av The Citizen.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
Allerede abonnent ? Logg på
Denne historien er fra September 06, 2024-utgaven av The Citizen.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
Allerede abonnent? Logg på
HANDRE IS NO OLD DOG
Pollard happy to play a mentoring role with the emergence of new, exciting talent in the Springbok ranks.
Shaping future Bok prospects
With the Currie Cup final between the Lions and Sharks set to be battled out at Ellis Park on Saturday (kick-off 4pm), many are perhaps wondering what place the country's oldest rugby competition still has in the current rugby ecosystem.
Saleng strike sinks Chippa
Monnapule Saleng netted an added time winner as Orlando Pirates came back from a goal down to beat Chippa United 2-1 in a Betway Premiership match at the Orlando Stadium last night.
Arsenal look for good jump-start
JORGINHO: USE ATALANTA AS A MAN CITY SPRINGBOARD.
Yamal's Barcelona are aiming high
Approaching a decade since Barcelona last won the Champions League, the Catalan giants face Monaco in this season's European opener today aiming to make a statement.
Reds strut past Milan
Liverpool strutted to a 3-1 win at AC Milan on Tuesday as the Reds got their campaign in the revamped Champions League off to a stylish start.
'Happy' Kylian hits his straps
Kylian Mbappe (above) scored on his first Champions League appearance for Real Madrid as the holders started their trophy defence with a 3-1 win over Stuttgart on Tuesday.
Kane punishes Zagreb with four
Harry Kane (right) scored four goals, including three penalties, as Bayern Munich beat Dinamo Zagreb 9-2 at home on Tuesday-becoming the first team to score nine goals in a Champions League match.
A good week to draft a will
Attorneys on the LSSA website ready to draft at no cost.
Discovery hikes rates
The lowest will be across Smart plans with a hike of 7.4%.
