A PLYMOUTH family have thanked a charity for the care and support it has given their daughter, who has a rare and life-limiting condition.
Ali and Luke Harris from Ernesettle have heaped praise on Children's Hospice South West (CHSW,) for the care it provides to their five-year-old daughter Thea Mae, along with their whole family, through its Little Harbour children's hospice in St Austell.
Thea Mae suffers with a one-in-amillion neurological disorder; Alternating Hemiplegia of Childhood. With only 50 cases in the UK and 500 in the whole world this is an incredibly rare disorder. It presents itself through a range of symptoms including painful muscle stiffness, cognitive impairment, migraines as well as heart, mobility and vision problems. Thea Mae also suffers with Dementialike symptoms and has to be fed through a tube.
Denne historien er fra December 11, 2023-utgaven av The Herald.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
Allerede abonnent ? Logg på
Denne historien er fra December 11, 2023-utgaven av The Herald.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
Allerede abonnent? Logg på
Sabine lands first RAF boxing title in nine years
THE first RAF national boxing medal for nine years has been claimed by a boxer from Plymouth. Corporal Jennifer Sabine, who is from Woolwell, emerged as the female under-50kg category winner at the England Boxing National Development Championships (EBNDC).
Perks off as Argyle are beaten by Robinesses
PLYMOUTH Argyle fell to an unfortunate 2-0 defeat to Cheltenham Town at Kimberley Stadium, in the FA WPL Premier Division on Sunday, with manager Ryan Perks sent off following a controversial second goal for the visitors.
Raiders maintain home record in friendly victory
IT WAS a hectic week in the world of the Plymouth Raiders, with the club having to pull out all the stops with Portsmouth Force being in National Cup action.
Nadal all poised for grand finale
Rafael Nadal will try to keep his emotions in check as he prepares for the final event of his professional tennis career.
Buttler wants to call on big guns
JOS Buttler has his fingers crossed Ben Stokes and Joe Root are keen on white-ball returns for England in a bid to get the “team back to where we want to be”.
Farmers to protest over inheritance tax
LARGE demonstrations by farmers were expected in London today as they fight to reverse \"absolutely unacceptable\" changes to inheritance tax.
Man jailed for arson threat on mosques
A FATHER-OF-FOUR who made a TikTok video threatening to burn down every mosque in Newcastle has been jailed for 20 months.
Starmer in call for 'respectful' ties with China
SIR Keir Starmer has said he told Xi Jinping he wanted “respectful” relations with Beijing as he became the first prime minister to meet the Chinese president since 2018.
Review into tree felling about to open
PANEL CHOSEN FOR INQUIRY'S INDEPENDENT INVESTIGATIONS
'Don't ever feel you're a nuisance'
CANCER SUFFERER SAYS GET CHECKED OUT
