As we watched our little girl dart around the living room, my wife Aimee, 43, and I were thrilled.
Our daughter Emily, then three, had just been given her first wheelchair, and watching her move around in a way she’d never been able to do before was amazing.
‘Look at this, Daddy,’ she said, as she raced around.
Touching this and feeling that, she was now able to get hold of things that were previously out of reach.
‘She’s loving it,’ I said to Aimee, as I marvelled at our little girl.
But it hadn’t always been smooth sailing.
Back in 2003, two days before Emily’s due date, Aimee and I were given the news that she would be born with Spina Bifida – a condition that means the spine doesn’t develop properly and a gap is left in the spine.
Right there and then, Aimee and I decided that our little girl was going to live life to the fullest and have enormous fun, in spite of her disability.
But straight away, we felt as though there was little support.
The NHS were fantastic but in terms of government support and guidance there was next to nothing.
As Emily got older, and more mobile thanks to her wheelchair, that theme seemed to continue.
We constantly felt as though we were battling for Emily’s voice to be heard.
As I flicked on the TV one day, I watched as Emily became glued to some of her favourite characters.
But I began to worry that none of what Emily saw represented her.
Denne historien er fra October 24, 2019-utgaven av Pick Me Up !.
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Denne historien er fra October 24, 2019-utgaven av Pick Me Up !.
Start din 7-dagers gratis prøveperiode på Magzter GOLD for å få tilgang til tusenvis av utvalgte premiumhistorier og 9000+ magasiner og aviser.
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ACCEPTING MYSELF
Claire Panchel, 32, from Burgess Hill, neglected her condition for years...
WHAT'S BURNING?!
When Leanne Chatfield, 32, from Brighton, smelt smoke coming from her kitchen, she couldn't help but panic...
SOMETHING STOLEN
Kayleigh Hanrahan, 29, from Wigan, never expected to lose so much on her wedding day...
FOCUSED ON NOW
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A HAND TO HOLD
Amy Brown, 29, from Kent, just wanted to take her children out to the park on her own...
JUST GETTING STARTED
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TASTES LIKE LOVE
Felicia DiSalvo, 21, flew all the way to Manchester for some British culture…
LURKING AT LUNCH
Carolyn Byington popped home for a bite to eat, unaware of an intruder that would make her regret that very decision…
LET'S TALK ABOUT SEX
Jenn Hanniston, 34, from Essex, and hubby Brad love stripping off to an audience...
CODE RED
When Victoria Lang, 31, from Banton, North Lanarkshire, experienced a period that was a cause of concern she never thought it would reveal something far more disturbing…