In a space not bigger than a modest 2BHK flat in Pune, neurosurgeon Dr Jaydev Panchawagh runs a clinic dedicated solely to treat patients of the "deadliest pain known to mankind". Confounded and desperate patients approach him complaining of recurrent episodes of "devastating pain", mostly around the jaw and forehead. It feels as if a drilling machine is piercing through their head, they tell him.
"It is extremely bad," says Anik Nanda, a patient of Panchawagh. "It makes you want to die, renders you completely hopeless and drained out. It is like a mad dog that keeps hounding you whenever it feels like.
Even in its absence, you anticipate its next strike." He was 24 when the pain first struck him. He lived with the pain for seven years before getting treatment at Panchawagh's clinic in 2019. "The first time it felt like an ache, but it kept getting intense and frequent, spreading all over the left side of my face in no time," he recalls.
"I became a zombie, living half a life." He approached numerous doctors, including psychiatrists, dentists and ENT (ear, nose and throat) specialists and took many medicines, all of which failed to provide relief. The solution came through microvascular decompression (MVD) surgery, which involves opening the skull and inserting a tiny sponge between the compressing vessel and the trigeminal nerve so as to create a buffer between the two, thereby fixing the root cause of the pain and also preserving the nerve. Panchawagh has so far conducted close to 800 such surgeries.
The pain in question is medically called trigeminal neuralgia. Nanda was not exaggerating when he said that the pain makes you want to die-trigeminal neuralgia is also known as 'suicide disease' because many patients develop suicidal tendencies. It is estimated that one in 15,000 to 20,000 people worldwide have trigeminal neuralgia and it is twice as common in women than in men. It usually affects people over the age of 50.
This story is from the July 28, 2024 edition of THE WEEK India.
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This story is from the July 28, 2024 edition of THE WEEK India.
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