A Mother's Love

Alison Parr from Congleton has spent years creating a safe space for her daughter Ruby and children like her – now she’s fighting to keep it.

When our daughter Ruby was less than a year old she was diagnosed with IDIC 15, a chromosomal abnormality that is incredibly rare.

With so little research into it we had no idea what the future would hold. She’s 12 now and she can’t walk or talk and has up to 30 seizures a day.

The early days were lonely. I stopped going to baby groups as I felt I no longer fitted in. Ruby wasn’t advancing in the same way other babies were, and it felt like we had to explain ourselves all the time, which was heartbreaking.