A DAD says he’s living and loving every minute of every day with his son and family after devastating hospital news.
Aydin Bukhari, 15, lives with Morquio Syndrome - a life-limiting and extremely rare condition which, if left untreated, can lead to a progressive deterioration in mobility, health and stamina.
It affects the growth of cartilage and bone and causes spine curvature and joints that are more flexible than normal.
Aydin featured in the Manchester Evening News as a boy back in 2015, when his parents spoke their relief after NHS bosses agreed to fund a potentially life-saving wonder drug.
He spent years taking part in a trial of the Vimizim drug at the Royal Manchester Children's Hospital.
But now Aydin's father, Waqas Bukhari, has revealed the family has sadly received the worst news possible. He said the hospital told them Aydin 'would only be with us for a matter of weeks' and had just a few more months left to live.
That was in July last year and Mr Bukhari said he has now closed his longstanding business, Ashiana Takeaway on Upper Chorlton Road, Stretford, Trafford, after almost 40 years to devote all his time to his son and family.
Bu hikaye Manchester Evening News dergisinin August 02, 2024 sayısından alınmıştır.
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Bu hikaye Manchester Evening News dergisinin August 02, 2024 sayısından alınmıştır.
Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 9,000+ magazines and newspapers.
Already a subscriber? Giriş Yap
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