You have WHAT?
New Zealand Woman's Weekly|February 28, 2022
Spare a thought for people struggling with conditions that few of us understand
You have WHAT?

One in 17 New Zealanders lives with a rare disorder or disease. Life can be a struggle for them as they manage health conditions that many other Kiwis are not even aware of.

WHAT IS A RARE DISORDER?

According to Rare Disorders NZ, New Zealand has no official definition of what is considered a rare condition and there are no specific government, health-system policies or programmes in place. European measures define a disorder or disease as rare when it affects fewer than one in 2000 people.

When they’re bundled together, a range of individual rare disorders collectively affect about six percent of New Zealanders, half of whom are children.

FACTS & FIGURES

Globally, there are more than 6000 different types of rare disorders, with more being discovered each day.

Around 72% of rare diseases are genetic and present throughout a person’s life, even if the symptoms do not immediately appear.

About 95% of rare diseases have no approved drug treatments.

هذه القصة مأخوذة من طبعة February 28, 2022 من New Zealand Woman's Weekly.

ابدأ النسخة التجريبية المجانية من Magzter GOLD لمدة 7 أيام للوصول إلى آلاف القصص المتميزة المنسقة وأكثر من 9,000 مجلة وصحيفة.

هذه القصة مأخوذة من طبعة February 28, 2022 من New Zealand Woman's Weekly.

ابدأ النسخة التجريبية المجانية من Magzter GOLD لمدة 7 أيام للوصول إلى آلاف القصص المتميزة المنسقة وأكثر من 9,000 مجلة وصحيفة.

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