With MND himself, Sam has followed the storyline and helped by visiting the Coronation Street set to meet the actors involved.
But he says Paul's final moments will be too difficult to watch and something he is not yet ready for yet.
Sam explains: "I do have to protect myself a little bit.
"Most of the time I have been watching, because it's very important and I don't want to shy away from it, but sometimes it's too painful.
"I know the inevitable is inevitable - every person with MND knows that's what's going to happen and I will watch Paul's death at some point. That probably won't be the day that it airs.
"It may take me some time to prepare myself and I will probably want to be alone.
"I know I will sit there bawling my eyes out but it's so good that Coronation Street has done this storyline because it does provoke that awkward conversation.
"I have never seen as much awareness as there is now about MND and that can only be a good thing for people like me.
A fit and healthy young man who had run the London Marathon twice, Sam was diagnosed with condition in March 2022, aged 35.
Initially putting pain and weakness in his wrist and hand down to repetitive strain injury, he eventually went to his doctor and after months of tests was given the devastating news.
MND is rare condition affecting the brain and nerves. It is fatal and usually progresses rapidly.
This story is from the September 09, 2024 edition of Daily Mirror UK.
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This story is from the September 09, 2024 edition of Daily Mirror UK.
Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 9,000+ magazines and newspapers.
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